My name is Amber, and I live with an incurable disease. How’s that for a conversation starter?
Prior to 2005, my doctors just believed I suffered from Hypoglycemia. However, several medical crises in 2003 and 2004 led my mom on a mad hunt to find the true answer to my suffering. In 2005 I was diagnosed with Primary Adrenal Insufficiency. In 2008, my diagnosis was formally changed to Addison’s Disease.
At the time of my diagnosis, not much was known about the disease and how to successfully live with it. I felt alone and isolated. No one could understand living with an unheard of disease. As years have passed, I have continued to learned more about this disease and how to successfully manage it so that my life can approach normalcy.
I wanted to start this blog to chronicle some stories of a life with Addison’s Disease. Living with a chronic disease that requires daily medicine can be quite difficult at times. It is easy to slip into depression and hopelessness.
I am done doing that.
I choose life. I choose optimism. And I choose to share some of my stories here.
I want people to know that I am Clearly Alive.