“My name is Amber, and I live with an incurable disease.”
I wrote that exactly one year ago.
One year ago, I decided I was done being silent about my disease. I wanted to share my story. I wanted to speak up so that others might learn. I want to tell people that it is ok that they can not fix my disease and that some days I just have no spoons left.
When I started this blog, I did not foresee my crisis in April. I did not realize that we would stumble upon how a generic hydrocortisone was poisoning me and many others. I have seen fourteen different specialists since April 19th, 2013. This past year has been difficult for me with my Addison’s.
I’m still Clearly Alive.
Oh, and I’ve learned that not everyone might understand what “STEROID DEPENDENT” means. I got a new medical alert bracelet to hopefully clear up the confusion. If you don’t understand that last line… well… then… you need help.
Here’s to my next year of blogging being even more full of adventure! But let’s make it the good kind of adventure. I’d like to avoid medical adventures for a bit.