The Wedding Dress
Destination weddings have a reputation for being happy, yet stressful and dramatic events. Since I was not the stereotypical bride, additional amounts of stress (even happy events) when not compensated for correctly can send me straight into the emergency room. This had to be a low stress destination wedding.
There were several steps I took to reduce the stress of wedding planning, and the wedding itself. The first step was my request of no parties or showers. Even though this confused and disappointed many, I declined all offers for engagement parties, bridal showers and bachelorette parties. While I appreciated those wanting to celebrate the occasion, I had to focus my limited energy on the major details of the wedding and prepare for our international move immediately afterwards.
Wedding Dress Shopping
One of the major details of the wedding I had to focus on was finding the right wedding dress. I purchased my dress at a David’s Bridal location that was very loud, crowded and overwhelming, especially to an introvert. I loved my wedding dress but I hated that store.
A quick way to make a female engineer with Adrenal Insufficiency shut down is to put her in a hectic and crowded store with way too much estrogen. I brought my mom, and my aunt, and was assigned to an overworked employee who kept forgetting about us. I had even tried to prepare ahead of time by taking an extra 5 mg of HC before I walked into the store, but that was clearly not enough.
I fell in love with the 1st of only 5 dresses I tried on. I loved it because it was comfortable and beautiful. David’s Bridal has a tradition that when the bride finds the dress, she rings a bell so that the entire store can cheer. No thank you. They were disappointed and felt the need to verify several times that I truly did not want to ring the bell when I found the dress. No. I did not want to ring the bell. I wanted to leave the store.
I’m Fading
My mom and I coined a new phrase for my Adrenal Insufficiency after our David’s Bridal experience. I just have to say “I’m fading” because as my body uses up what limited cortisol I supplement, I begin to fade.
At first, I become agitated, then overwhelmed and confused as my cheeks flush and turn red. If I don’t get intervention, I struggle speaking and I cannot understand the world around me. This is different than an Adrenal Crisis where I crash suddenly and must seek immediate emergency medical intervention. But it can be just as dangerous because with no additional intervention this “fading” can slip into a full blown Adrenal Crisis.
I began to fade more the longer I remained inside David’s Bridal, but I did not have the words to communicate that to my mom. All of the loud external stimulation without ample cortisol coverage was too much for my broken adrenal glands. My mom took a few pictures at the very end so that we would have some photos of me in the dress even though it was the wrong color and size, but the correct style.
Those who know me can see in my face that I was not feeling well. My chest was flush and my cheeks were red. I struggled to formulate sentences to tell my mom goodbye. I could not articulate that I was barely able to drive home because I was so fatigued. Once I returned to my apartment, I immediately took additional HC and ate an entire can of black olives (including drinking the olive juice). Yet it took almost three hours before I could move from my couch again.
mal
I love hearing your stories. You are inspiring to me in all your stories. Love hearing how you made it through this stressful but amazing journey. Keep writing and stay who you are. Strong.
Joe
I can see the "I'm done", it's a familiar me in the mirror expression too.
Julie
Love your blog, Amber. Your description of "fading" is spot on. I'm sorry you're going through it, but it's a comfort knowing someone else knows exactly how I feel.
Anonymous
Wow the fading description is perfect! Thank you for sharing.
Anonymous
I have addison's as well. I've never met or talked to anyone who has it. I'm so glad to read your blog and can relate.
Ashley M
Thank you, Amber, for putting this into words! I am so familiar with the fade out. I’ve been dealing with undiagnosed adrenal insufficiency for at least 15 years. It’s gotten to the point where I realize that the way I’m “living” is not a life. It’s a half-life at best, quarter-life at worst. There are days where I can barely function, where I call into work because my exhaustion from going to the grocery store or cooking a meal, is unbearable. I’ve been trying to get a formal diagnosis since 06/2021 which is when my health’s steady decline started. I finally have an appointment next week with an endocrinologist who specializes in adrenal disease. Your posts give me a measure of hope that a full and healthy life is possible!
Amber Nicole
Oh I’m so sorry to hear that you’ve been struggling for so long! May your appointment go well and may you regain your ability to live Clearly Alive!
~ Amber