I must confess that this post has nothing to do with Adrenal Insufficiency. This is a post about living in Malaysia. Malaysian Elevators The elevators in Kuala Lumpur are weird. It took me about a day here to realize that I would have many fights with these elevators. I...
Reading time: 2 min
Destination weddings have a reputation for being happy, yet stressful and dramatic events. Since I was not the stereotypical bride, additional amounts of stress (even happy events) when not compensated for correctly can send me straight into the emergency room. This had to be a low stress destination wedding. There...
Reading time: 3 min
I arrived in Kuala Lumpur on March 7th, 2014. Instead of traveling straight there, I broke up the international journey into more “manageable” chunks because sleep deprivation and Adrenal Insufficiency do not play nicely with each other. I first flew from DFW to PHX. From PHX, I flew into LAX....
Reading time: 3 min
I write about my life with Addison’s Disease yet until January 23rd, 2014 I had never met another person with the same disease. I communicate regularly online through things like this blog or online support groups, but to share a meal with someone who could understand and relate? It was...
Reading time: 3 min
Let me start out by stating that 2013 will go down as one of the most challenging years in terms of medical drama. It competes with 2005, and that was the year that I was officially labeled with Adrenal Insufficiency! I never ever want to experience another year like it. Below...
Reading time: 6 min
The leaves were frozen in the same direction that the wind blew. Photo from Dec 2013. Confession I am a warm weather gal. Broken branches everywhere. Photo from Dec 2013. I have survived Texas summers, Georgia summers, Florida summers, Iowa summers, and Arizona summers. The only way I survived my...
Reading time: 3 min
I’ve had an idea floating around for quite some time. I wanted awareness t-shirts. But I was not satisfied with just any awareness shirts. Oh no, I wanted them to be a bold, in-your-face, cannot be ignored type of shirt. My first draft might have been a little too in-your-face. ...
Reading time: 1 min
“My name is Amber, and I live with an incurable disease.” I wrote that exactly one year ago. One year ago, I decided I was done being silent about my disease. I wanted to share my story. I wanted to speak up so that others might learn. I want to tell people...
Reading time: 1 min
Does your generic HC look like this? If yes, switch to a different brand ASAP. In The Nightmare Revisited, I made the bold claim that I am allergic to the generic hydrocortisone. It was one of the five things that triggered my April Crisis. This has generated much discussion through various...
Reading time: 6 min
Does your generic HC look like this? If yes, switch to a different brand ASAP. In The Nightmare Revisited, I made the bold claim that I am allergic to the generic hydrocortisone. It was one of the five things that triggered my April Crisis. This has generated much discussion through various...
Reading time: 6 min
The Project In 2016, I participated in a project for a Nevada photographer. Her goal was to publish a book containing stories of people finding “Beauty in the Desert.” Below is her description of her project. Everyone has fought a battle in their own lives and has gone through something...
Reading time: 4 min
My mom and I have been in your shoes. I remember the doctor coming in and hurriedly explaining the disease to us. No cure. Diseased for life. Steroid Dependent. Be mindful of stress. And yet, I can live a “normal” life? Over the years, we slowly realized that we were...
Reading time: 2 min
First of all, welcome to the family. Although I am not sure of the exact path you took to become part of the “broken adrenal glands club” (also known as Adrenal Insufficiency), I would like to extend to you the warmest welcome. As someone who has been on this journey...
Reading time: 2 min
I began using a Medtronic MiniMed Paradigm 715 pump to infuse solu-cortef as my main treatment for my Adrenal Insufficiency in early 2014. MM715 by Medtronics. I could not publicly announce it when I first started treatment because the door opened up in an unorthodox and unexpected way. Also, please...
Reading time: 2 min
Dear readers, I would like to explain more about my journey on the cortisol pump. When I returned from Malaysia, I attempted to return to my Endo #6. While I was living abroad, she joined a practice with Endo #4, a doctor who did not play nice with me. When...
Reading time: 2 min
Abuser, I am sorry that our marriage was not what you pictured. I have always been honest with you. My name is Amber. I live with an incurable disease. You often stated that you wanted to marry Amber and not Addison’s. However, you cannot have one without the other. They...
Reading time: 2 min
I was texting a friend about how at times my Addison’s Disease can be scary. He asked me a simple question. “What’s scary about it?” “I think I have this beast controlled and then I’m reminded how I don’t.” “The disease?” “Yeah. Maybe I should view it as something I...
Reading time: 1 min
I formerly worked as a product engineer in the semi-conductor field. My goal was to identify a problem as quickly as possible, figure out how it happened, and fix it. I got bonus points if I fixed it in such a fashion so that it will never happen again. My...
Reading time: 4 min
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