31Dec
2025, A Recap
I often start these recaps by saying the year was a roller coaster. 2025 was
31Dec
2024, A Recap
This was one of the harder recap years to write. Spring of 2024 felt so
17Feb
The Rare Life: Stronger than Ever, Stronger Together
Introducing Michelle I first met Michelle in person in 2017. We realized that we were
27Jan
How Do You Get a Rule Adopted at the NIH? You Call the Wrong Number.
My dear friend Michelle has been featured on this blog numerous times over the years.
31Dec
2023, A Recap
My health seemed to have stabilized in 2023 through the addition of some new medication
23Dec
A Decade of Recaps!
It seems crazy to think that not only is my blog now over a decade
